Forms of resistance in people with severe and profound intellectual disabilities

Finlay, W. M. L. ORCID logoORCID: https://orcid.org/0000-0002-9351-0151, Nicholson, Clare and Stagg, Steven D. ORCID logoORCID: https://orcid.org/0000-0003-0013-8694 (2021) Forms of resistance in people with severe and profound intellectual disabilities. Sociology of Health and Illness, 43 (3). pp. 642-659. ISSN 1467-9566

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Official URL: https://doi.org/10.1111/1467-9566.13246

Abstract

Government policy in the UK emphasises that people with intellectual disabilities should have the opportunity to make choices and exert control over their own lives as much as possible. The ability of a person to resist activities and offers is therefore important, particularly for people with severe and profound intellectual disabilities, who are likely to have language impairments and need to communicate their choices non‐verbally. Video and ethnographic data were collected from two services for people with severe and profound intellectual disabilities. Examples of resistance by people with severe and profound intellectual disabilities and responses to that resistance by support workers were collected and examined using conversation analysis and ethnographic description. A range of non‐verbal resistance behaviours are described, and the difficulty for support workers in identifying resistance when behaviour is ambiguous is discussed. The importance of understanding these behaviours as examples of decision‐making is stressed.

Item Type: Journal Article
Keywords: severe intellectual disabilities, profound intellectual disabilities, resistance, empowerment, self-determination, non-verbal, communication, conversation analysis, decision‐making, interaction, person‐centred, qualitative, resistance
Faculty: Faculty of Health, Education, Medicine & Social Care
SWORD Depositor: Symplectic User
Depositing User: Symplectic User
Date Deposited: 19 Jan 2021 09:51
Last Modified: 21 Sep 2022 07:03
URI: https://arro.anglia.ac.uk/id/eprint/706196

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