Developing and evaluating a participatory arts programme for cancer patients and their caregivers

Lefebvre, Tessa and Tack, Laura and Meersman, Marlies and Vanneste, Hilde and Cool, Lieselot and Van Eygen, Koen and Stellamans, Karin and Derijcke, Sofie and Vergauwe, Philippe and De Backer, Jos and Chandler, Rebecca C. and Lane, Pauline and Boterberg, Tom and Debruyne, Philip R. (2020) Developing and evaluating a participatory arts programme for cancer patients and their caregivers. Acta Clinica Belgica. ISSN 2295-3337

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Objectives: Cancer patients, survivors and caregivers often encounter severe distress, having significant consequences to wellbeing, functionality and physical health. This study developed and evaluated a participatory arts programme to determine if such could help to improve the wellbeing of cancer patients and their caregivers. Methods: To inform the development of a participatory arts programme, cancer patients and their caregivers at an Organisation of European Cancer Institute (OECI)-designated cancer centre were asked which activities they would wish to engage in (anonymous survey one). A programme was then developed and trialled for 1 year. Following participation, we explored the satisfaction and any benefits of taking part (anonymous survey two). Results: Survey one had a participation rate of 70%. In this survey, participants indicated they preferred group-based activities (61%) over an individual approachto take place on a monthly basis (46%). The developed programme ran from December 2018 to December 2019, with 435 patients and caregivers taking part. Two hundred and eighteen completed survey two and revealed a positive response to both the structure and content of the programme and its impact on the wellbeing of patients and caregivers. The majority indicated they felt (much) betterfrom participating in the participatory arts programme. Conclusion: This study points out the interest and potential value of a participatory arts programme to the perceived wellbeing. This suggests such programmes could be incorporated into cancer care provision, to serve as psychosocial support. The latter is particularly relevant for improving the lives, wellbeing and health of cancer patients and those supporting them.

Item Type: Journal Article
Faculty: Faculty of Health, Education, Medicine & Social Care
Depositing User: Lisa Blanshard
Date Deposited: 25 Sep 2020 11:30
Last Modified: 09 Sep 2021 16:06

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