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The Critical Illness Trajectory - a parallel experience for survivors and their relatives

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posted on 2023-08-30, 14:21 authored by Pam Page
Introduction: The missing voice of the critically ill has been highlighted by Rier (2000). Whilst physiological survival of the critically ill is a driving imperative there is an increasing awareness of the psychological, cognitive and physiological sequelae that may follow survival. Liminality may provide a theoretical lens to view the parallel realities of survivors and family members. Method: Utilising Constructivist Grounded Theory, cycles of constant comparative data have been collected from survivors of critical illness and their relatives. Substantive or formal theory may develop that accounts for data and context variations. IRAS and NHS Trust R&D approval granted. Findings: Analysis of 16 patient and 17 relative interviews is ongoing but emergent focused codes include: (1) Ambiguous Loss (2) Disruption of relationships (3) Dreams and hallucinations (4) Critical junctures (5) Facing mortality. A core category of parallel realities may be linked with the concept of liminality. Practical relevance: This study provides a “medical gaze” on critical illness rather than chronic illness and may bring new sociological insights to the illness experience. The concept of “survivorship” -moving from surviving to thriving is a new imperative in acute health care (Hart 2014)

History

Publisher

British Sociological Association

Place of publication

Durham, UK

ISBN

9780904569452

Conference proceeding

BSA Annual Conference 2016, Global Societies: Fragmenting and Connecting

Name of event

BSA Medical Sociology Group Annual Conference 2015

Location

York, UK

Event start date

2015-09-09

Event finish date

2015-09-11

File version

  • Accepted version

Language

  • eng

Legacy posted date

2016-08-02

Legacy creation date

2016-07-29

Legacy Faculty/School/Department

ARCHIVED Faculty of Health, Social Care & Education (until September 2018)

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