Repertoires of Responsibility for Diabetes Management by Adults with Intellectual Disabilities and Those who Support Them

Rouse, Lorna and Finlay, W. M. L. (2016) Repertoires of Responsibility for Diabetes Management by Adults with Intellectual Disabilities and Those who Support Them. Sociology of Health and Illness, 38 (8). pp. 1243-1257. ISSN 1467-9566

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The limited existing research on diabetes management and intellectual disabilities (ID) highlights the need for further exploration of the concept of responsibility. This study explored repertoires of responsibility in accounts of managing diabetes for adults with ID. Fourteen semi-structured interviews were conducted in the UK with 7 adults with mild/moderate ID and type 1 or 2 diabetes and 7 people who they nominated as supporting their diabetes management. A discursive psychological analysis found that interpretative repertoires relating to competence, independence and accountability were drawn on to construct multiple and sometimes conflicting versions of responsibility. Within these repertoires people with ID were positioned in conflicting ways; as competent, personally responsible, and entitled to independence and choice, but as also lacking competence, dependent on others and incapable of overall accountability. People with ID often took up empowering positions defending against an incompetent identity. Supporters built accounts which negotiated dilemmatic repertoires on the dual responsibilities of empowering adults with ID to self-manage and managing risk to support good and safe care. The implications of available discursive resources and the ways in which they are mobilised are considered.

Item Type: Journal Article
Additional Information: This is the peer reviewed version of the following article: [Rouse, L. and Finlay, W.M.L., 2016. Repertoires of responsibility for diabetes management by adults with intellectual disabilities and those who support them. Sociology of Health & Illness], which has been published in final form at [10.1111/1467-9566.12454]. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving
Keywords: intellectual disabilities, diabetes, responsibility, discourse, empowerment
Faculty: ARCHIVED Faculty of Science & Technology (until September 2018)
Depositing User: Dr W.M.L. Finlay
Date Deposited: 08 Jun 2016 07:43
Last Modified: 03 Feb 2022 15:48

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