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Balance outcome measures in cerebellar ataxia: a Delphi survey
journal contribution
posted on 2023-07-26, 13:39 authored by Stanley J. Winser, Catherine M. Smith, Leigh A. Hale, Leica S. Claydon, Susan L. WhitneyPurpose: Choosing an appropriate outcome measure for the assessment of balance among people with cerebellar ataxia is currently challenging as no guidelines are available. There is a need for further investigation with clinical experts in order to derive a set of standardized outcome measures with high clinical utility. Methods: A two-round internet-based Delphi survey was considered. A steering committee was formed to guide the Delphi process. Neurologists and physiotherapists with clinical and research experience in cerebellar ataxia were identified as the expert group. Consensus among the experts for recommendation was set at 75%. Results: Thirty experts representing 10 countries agreed to participate. The response rate for the rounds were 87% and 96%, respectively. Forty-one relevant outcome measures were identified. The Berg Balance Scale (BBS), the Scale for the assessment and rating of ataxia (SARA), the Timed Up and Go test (TUG) were identified as the best outcome measures for use with at least 75% consensus among the experts. Conclusion: The recommended outcome measures (SARA, BBS and TUG) are available at no cost, require little equipment and are quick and easy to perform; however, formal psychometric testing of the BBS and TUG in people with cerebellar ataxia is warranted.
History
Refereed
- Yes
Volume
37Issue number
2Page range
165-170Publication title
Disability and RehabilitationISSN
1464-5165External DOI
Publisher
Taylor & FrancisLanguage
- other
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Legacy posted date
2015-09-22Legacy Faculty/School/Department
ARCHIVED Faculty of Medical Science (until September 2018)Usage metrics
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