Constructing a grounded theory of critical illness survivorship; the dualistic worlds of survivors and family members

Page, Pamela and Simpson, Alan and Reynolds, Lisa (2019) Constructing a grounded theory of critical illness survivorship; the dualistic worlds of survivors and family members. Journal of Clinical Nursing, 28 (3-4). pp. 603-614. ISSN 1365-2702

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Official URL: https://doi.org/10.1111/jocn.14655

Abstract

Aim of the study: To understand the critical illness trajectory from patient and relative perspectives. Background: In the context of increasing survivorship from critical illness, it is important to enhance our understanding of the subjective experience of survivors and their families. The need to consider the legacy of critical care beyond physiological survival is imperative. Methods: Using a constructivist grounded theory methodology, in‐depth interviews were undertaken with survivors of critical illness (n = 16) and family members (n = 15). Constant comparative analysis and data collection occurring concurrently with theoretical sampling commencing from the outset. EQUATOR guidelines for qualitative research (COREQ) applied. Findings: Survivors of critical illness invariably experienced vivid, hallucinatory experiences which placed them in a different world or liminal space. The core difficulty can be summarised as follows: Survivors have little recall of the factual events of their critical illness but relatives have lived the whole event in a very real and ingraining manner. This can result in family members and survivors experiencing different versions of the critical illness episode. Conclusion: Survivors of critical illness, together with family members, experience challenges when endeavouring to readjust to life post critical care. This study has identified a middle range theory of dualistic worlds between and within the survivor and family member experiences. Exploring the dynamic interplay between intrapersonal, interpersonal and societal factors has provided theoretical insights with practice implications in relation to surviving critical illness. Relevance to clinical practice: The findings from this study highlight the need for a rehabilitation infrastructure following critical illness to support the existing UK national guidance, ensuring the individual and holistic needs of survivors and their families are met. Conversations with survivors and their families around critical illness survivorship are frequently absent and needed early in the recovery period.

Item Type: Journal Article
Faculty: Faculty of Health, Social Care & Education (for research post September 2011)
Depositing User: Ian Walker
Date Deposited: 05 Sep 2018 14:58
Last Modified: 24 Apr 2019 15:42
URI: http://arro.anglia.ac.uk/id/eprint/703548

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