Stage 1 Development of a Patient Reported Experience Measure (PREM) for Chronic Obstructive Pulmonary Disease (COPD)

Walker, Susan H. and Andrew, Sharon and Hodson, Matthew and Roberts, C.M. (2017) Stage 1 Development of a Patient Reported Experience Measure (PREM) for Chronic Obstructive Pulmonary Disease (COPD). npj Primary Care Respiratory Medicine, 27 (47). ISSN 2055-1010

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Official URL: https://doi.org/10.1038/s41533-017-0047-5

Abstract

The study aimed to explore patients’ experience of living with COPD and their perspective of their community health care for COPD to extract affective responses in order to develop potential items for a patient reported experience measure (PREM) for Chronic Obstructive Pulmonary Disease (COPD). Qualitative face-face interviews were conducted, in the community, with 64 patients with COPD recruited from General Practices and Breath-Easy community groups in the Outer North East, East and City, London and Essex, UK. A two phase analysis of the qualitative data was conducted to identify themes arising from patients’ description of living with COPD and their perceptions of their community health care and subsequently the affective responses underlying the themes raised by patients, which gave emotional colour to the themes, bringing the thematic analysis closer to the subjective patient experience. Five themes were identified from the interview data: ‘Journey to diagnosis’; ‘Smoking’; ‘Usual care’; ‘My everyday life’; and ‘Exacerbations’. Twenty affective responses were identified and categorised as either ‘negative’, ‘positive’ or ‘bivalent’. ‘Frustration’, a negative affective response was prevalent in four themes. ‘Gratitude’, ‘hope’ and ‘happiness/enjoyment’ were among the more positive responses more prevalent across several themes. By conducting a novel two-way analysis (thematic and affective) it was possible to identify themes and affective responses that were aligned to those themes. This enabled the development of 38 COPD specific experience items to take forward for further testing including item reduction and validity and reliability in the next stage of the PREM development.

Item Type: Journal Article
Keywords: COPD, Patient Experience, PREM, Chronic Obstructive Pulmonary Disease, Primary Care
Faculty: Faculty of Health, Social Care & Education (for research post September 2011)
Depositing User: Dr Susan H Walker
Date Deposited: 28 Jul 2017 15:08
Last Modified: 22 Aug 2019 09:04
URI: http://arro.anglia.ac.uk/id/eprint/701925

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